Since the early 2000s’, I have been involved with the NSTA in various endeavors. These include a presenter at symposiums, a writer for the ST Quarterly, an advocate for Dystonia Advocacy Day in Washington DC, and a guest with Ken Price on a local radio show. In addition, I have been an encourager by phone […]
The Dystonia Coalition (DC) solicits applications for Pilot Projects Program (PPP) and a Career Development Award (CDA) each year. All applications are reviewed by the DC’s Review Boards and during a recent annual meeting, it was suggested that the DC share information with all Patient Advocacy Groups (PAG). This give PAGs the opportunity to co-supporting […]
Dr. Brian Berman is no stranger to the NSTA. He has supported the NSTA in many ways including presenting on “Neuroimaging in Spasmodic Torticollis” at the 2013 NSTA Symposium in Atlanta, Georgia. On Saturday, March 26th at 10:00 AM Pacific Time, Dr. Berman is our guest speaker for the next NSTA webinar. His topic is […]
The Dystonia Advocacy Network needs your help in raising awareness of dystonia with elected officials and supporting the need for more dystonia research. Please consider becoming a dystonia advocate and joining with others across the country in making a difference. Training is provided and an overview of the issues will be done via a webinar […]
The TOXINS 2022 6th International Conference which will be held July 27-30, 2022, in New Orleans, Louisiana. The TOXINS conferences are the premier venue for consideration of the latest developments in the basic science and clinical applications of neurotoxins. The scientific program―presented by the world’s experts in their respective fields―will be of interest to basic scientists and […]
December 2021 The following is an update of a column I wrote for the Spring 2015 issue of the ST Quarterly on my unusual and successful treatment for my Spasmodic Torticollis (ST). Although I still have muscle spasms in my cervical region, they are generally quite mild and painless, I have free movement and correct […]
Dear Brain Awareness Week Partners, Brain Awareness Week—March 15-21—is less than two months away, and we’re looking forward to hearing how you plan to celebrate in your community! Partners can now log in to the Brain Awareness Week website to post your event information on the Calendar of Events. With the Covid-19 pandemic continuing to […]
We invite you to become a dystonia advocate and help to support research funding, access to treatment and help Members of Congress know what dystonia is and how it changes lives. In 2021, the Dystonia Advocacy Network (DAN) will host a virtual Advocacy Day on March 3rd that will launch our year-long advocacy activities and […]
Dear Friends of the NSTA, The holiday season is just around the corner and with everyone preparing by shopping early for friends and family, we want to remind you that you can do so and help support the NSTA and other charities by shopping at smile.amazon.com, or to donate items directly from your AmazonSmile Charity […]
WANT TO KNOW MORE ABOUT SPASMODIC TORTICOLLIS/CERVICAL DYSTONIA? The NSTA Symposium is Back! It is with a grateful thank you to the generous donations from Diane Truong, the late emeritus board member Bob Farmer, and from our sponsors Allergan Inc., Ipsen, MedTronics and US WorldMeds LLC, that we are proud to host our first symposium […]
37-year old patient with cervical dystonia Original story published on https://amadys.fr/temoignage/temoignage-de-m-adherent-dystonie-cervicale-se-reeduquer-apprendre-a-bien-vivre-maladie/ Having worked for several years as both a tour guide and a teacher in Paris, while pursuing my PhD in art history, I was diagnosed last year at the age of 36 with cervical dystonia. Receiving this diagnosis – which came, fortunately enough, only […]
Botulinum toxin is a widely used treatment for cervical dystonia, but many patients find that it wears off before they can get another shot and some have problems with the side effects. Is there a better answer? Think about volunteering for a research study and help to find out. A new investigational study drug, DAXI […]