Is your cervical dystonia medication wearing off too soon, with the pain returning? You’re not alone. A Phase 3 global research study called ASPEN, sponsored by Revance, needs people aged 18 to 80 who have been diagnosed with isolated cervical dystonia and who haven’t had a botulinum toxin injection within the previous 14 weeks. The […]
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2018 Fall ST Quarterly Magazine coming soon!
09
Nov
The 2018 fall issue of the ST Quarterly magazine will be mailed out soon. We have some interesting articles including need-to-know information on what is involved when you participate in a drug study. The following is the article that contains this information that is in the upcoming fall issue. We hope that you find this […]
2017 Zent-A-Thon 5K Walk/Run Fundraiser – June 10, 2017
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On Saturday, June 10th, the Parkinson’s and Movement Disorder Foundation (PMDF) and the NSTA hosted the seventh Zent-A-Thon 5K Walk/Run fundraiser at Mile Square Park. Despite the muggy weather and short shower early in the morning, we had a great turnout. Over 125 people attended the Zent-A-Thon, making this our largest attendance to date! A […]
Our Fundraiser with a Different Name is Still as Sweet! – MOVE4U 5K Walk/Run at Mile Square Park
24
Feb
On Saturday, May 19, 2018, the NSTA is hosting a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California together with the Parkinson’s and Movement Disorder Foundation(PMDF) . Proceeds will help the NSTA in providing information and support to people spasmodic torticollis/cervical dystonia and the PMDF raise funds to support research. If you […]
Loma Linda University – 2018 Patient and Caregivers Dystonia Symposium
22
Jan
Loma Linda University is hosting the on Friday, March 23 from 8:45am – 2:30pm. This will take place at: Wong Kerlee Conference Center 11175 Campus Street Loma Linda, CA 92350 The event is free for patients and caregivers. Breakfast and lunch is included. To register please call 909-558-5929
2017 Summer Fundraiser for the Parkinson’s and Movement Disorders
03
May
The National Spasmodic Torticollis Association (NSTA) and Parkinson’s and Movement Disorder Foundation (PMDF) is hosting a fundraiser for Parkinson’s and Movement Disorders (which includes dystonia). On Saturday, June 10, 2017, we are hosting a 5K Walk/Run fundraiser at Mile Square Park in Fountain Valley, California. Proceeds will help the NSTA and PMDF in providing supporting the […]
Southern California Regional Conference – Saturday March 25, 2017
15
Feb
The NSTA is hosting a SoCal Regional Conference on Saturday, March 25, 2017. The conference will take place at the Long Beach Marriott, 4700 Airport Plaza Drive, Long Beach, California 90815. Registration for the conference is FREE thanks to our sponsors. The NSTA is hosting a SoCal Regional Conference on Saturday, March 25, […]
Volunteers Needed for Research Survey – “Reproductive Factors and Cervical Dystonia”
04
Nov
Dear Friends of the NSTA The “Reproductive Factors and Cervical Dystonia” study being conducted by the Chairman of our Medical Advisory Board, Dr. Mark LeDoux has been announced in the ST Quarterly magazine for over a year. We have been informed that over 1000 dystonia respondents participated in the study however they have less than […]
Dystonia versus Spasticity by Drake D. Duane, MS MD
26
Sep
These two are very different terms in medical language. Both imply muscle “spasm” or involuntary contraction; however, both are caused not by muscle disorders, but by brain or spinal cord disorders. Any of us might experience a muscle spasm as say in a muscle cramp or after any painful injury muscles may tighten up. These […]
Dystonia Advocates’ From Across the Country Convened in Washington, D.C. By Jeff Shair
26
Sep
It was an honor and a privilege that I was asked to represent the NSTA this year for Dystonia Advocacy Day. Representatives from Dystonia Advocacy Network (DAN) assembled in Washington on Capitol Hill for the purpose of bringing awareness to the cause and to lobby for more funds for the disorder. In actuality, it was […]
NSTA Hosts Two Successful Fundraisers!
02
Aug
The NSTA hosts two major fundraisers annually to raise funds and spread awareness of cervical dystonia. One fundraiser is in the form of a 5k Walk/Run called the Zent-A-Thon that is held together with the Parkinson’s and Movement Disorder Foundation (PMDF, www.pmdf.org). The other fundraiser involves NSTA joining a dozen non-profit food booths at the […]
NSTA Summerfest Fundraiser – Fountain Valley, California
21
Jun
The Fountain Valley Summerfest Committee, in partnership with the City of Fountain Valley, California is launching its 8th annual community celebration called “Fountain Valley Summerfest” to be held June 24, 25, and 26 at the Fountain Valley Sports Park at Brookhurst and Heil. This 4-day celebration will include carnival rides, food and beverage booths, game […]